Sunday, June 1, 2014

Life is not Always Perfect

I was looking up something up on Facebook, and I came across a group that's called Shut Up About Your Perfect Kid. I read this and realized that we all act like everything is perfect on the outside. We put all the good things out there and post the best of the best. It's hard to let others know life isn't perfect and sometimes we struggle, but we all do. We all deal with different things and here's one I've been dealing with lately that I don't mind being candid about...When Hayven went in for her one month well check, the doctor noticed that Hayven preferred to look to the right side. I realized it too, and asked about it, but didn't think much of it and just thought she liked looking to that side. You probably wouldn't notice it unless I told you. The doctor told us she had a mild form of congenital torticollis. I didn't have a clue what that was, but she reassured me that it wasn't anything to be seriously alarmed about, and we could do some things to try to correct it early on. Congenital torticollis is most often due to tightness in the muscle that connects the breastbone and the collarbone to the skull. It's called the sternocleidomastoid muscle.  About 1 in 250 babies are born with torticollis. The tightness in the neck may have developed because of the way Hayven was positioned in my uterus (with the head tilted to one side and being cramped inside) or because the muscles were damaged during delivery. I'm pretty sure it was because of the way she was positioned in my uterus because I didn't have any issues while delivering her. The doctor showed us a few stretches to do for torticollis, & of course, I researched it like crazy and got a lot of information about it. The stretches aren't fun for Hayven, and I do not like doing them because she doesn't like it. I still try to do them and I know it's just uncomfortable for her, so it's hard. They aren't bad and have her just stretching and turning her head to the side for a set amount of time, but she doesn't like them.  Tummy time is also very important for her to be able to strengthen those neck muscles, but she LOATHES tummy time. I can maybe get her to do it for about 2-3 minutes before she starts pitching one. I've tried doing tummy to tummy and putting her on the boppy & on the bed, but she wants nothing of it. What I can relate it to is a crick in your neck and you've got to get the crick out, but it's a little bit more serious than that. Supposedly it's not as painful for her like a crick in our neck is for us, but when I try to stretch her neck she seems bothered by it. One of the things that we don't want is for her to develop positional plagiocehphaly (asymmetrical head shape) because she often sleeps with her head turned to the side that she prefers. When ever she is in her bassinet, bouncer, car seat or anything I try to position her to have her head to the other side, but it never fails that she will turn it the other way especially now that her neck is getting stronger. If she does develop this, she will have to wear a sweet little helmet to help correct a flat spot on her head. I think she has somewhat of a slight flat spot developing, but I'm not really sure. The doctor said everything looked okay at this point. I worry about this so much. I know it's not that big of a deal, but being a mommy it just worries me. I don't want her to have to have a helmet on and it not be comfortable or hot or what not. I worry all the questions people would ask and if others would talk about her.  When I look on websites with some information people post things like just hold your kid and they wouldn't get flat spots. Things like this hurt my heart. I hold my baby and love and cuddle her all the time. Comments like this worry me. I don't want people to think this about me. People can be mean. I realize that's probably just my thoughts getting the best of me, and I shouldn't much care if people were talking about her because they are the ones that aren't educated on the issue, but...I worry. I can't help it. At her 2 month checkup we discussed it again, and it's gotten a tad bit better. Her muscles are stronger now, but she still prefers to look to the right. An option to help correct the torticollis is physical therapy and we decided to check back in at her 4 month well check to see how things are going. It's hard being in limbo and waiting, and some days I just want to go ahead and get her in physical therapy to be proactive and correct it early on. I get bogged down with the research and things that could possibly go wrong or be wrong, but honestly, she's fine. She's met all the milestones that she's supposed to have met. I just work myself up and Bull tells me to stay off Google. Ha! I know if that's the only issue we have to deal with, then we are beyond lucky blessed. I know we have God's grace and we will get over this mountain. I continually tell myself to not worry about anything, but instead, pray about everything. Do you know anyone that has experienced this? I'd love to hear from you or your story.



2 comments:

  1. I am so humbled by this post! Your right... we can make everything seem like its okay when sometimes its not. Ist tough talking about these things especially when it has to do with our babies <3 I commend you on that. My son did not have this problem, so I do not know a lot about it... but what I do know is God has this :) I will be praying for you all...

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  2. Thanks girl. He does have this & constantly reminds me He's in control & not me.

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